Well, it's been over four years and I had forgotten I even started this blog! I just read my introduction and nothing has changed that much since my original post. I still have my good and bad days. This summer I had a lot of good days. It was wonderful. I wish I had blogged about it. I went to the beach several times. My boyfriend and I stayed a mile from the beach for a week. That was heaven! Then, at the beginning of October I started feeling really tired. I got a cold the week after and I've been sick for about six weeks. I have had a few days that I was able to go to the store. I'd say on a good day I could shower and go to the dollar store. Today was probably the best day I've had in awhile. I showered, got dressed, went to Burger King to get a shake. I brought the shake to my boyfriend's grandson Jaxson. Only stayed for ten minutes or so. Then I went to the water nearby where there are boats. It's November and it's sixty degrees out! Then I went to the park near there and took some pictures. I am seriously thinking about getting more into photography. So, then I went to see my friend Liz and her 2 month old baby, Josiah. He is so adorable. I stayed for about an hour. I went to the market after to get some things for dinner. Now I'm tired but so grateful to have had such a good day! I'm hoping to get some followers on here. I have a lot of friends on facebook but naturally many of them can't understand what people with these types of illnesses go through so I thought maybe I could write here and hopefully help people understand this illness.
I have been reading alot lately about various treatments that people have tried and have found helpful. I am now taking sub-lingual Vit B12, as Cyanocobalmin,1500 mcgs a day. I also take a packet of Emergen C every day. It had 1,000 mg of Vitamin C as well as smaller amounts of vitamin Bs. I have a drs appointment next week and I want to see if I can get Vitamin B12 shots once or twice a week. There are different types of B12. See below:
Hydroxocobalamin: Is not a form normally found in
the human body, primarily produced by bacteria but can be converted in
the body to useable, coenzyme forms of B12, methylcobalamin and
adenysylcobalamin, the only forms able to cross the blood brain barrier.
Interestingly, Hydroxocobalamin attaches itself to cyanide and is
therefore used for smoke inhalation victims If glutathione is low the
conversion from hydroxocobalamin will be blocked and methylcobalamin would be the preferred form of B12. Link to research.
Cyanocobalamin: Is the cheapest and most stable form
of B12 and has a long shelf life but needs to have the cyanide molecule
taken off, so has an extra conversion before being converted to methyl
or adenyslcobalamin. With a certain eye condition, (Lebers hereditary
optic neuropathy) cyanocobalamin should not be used.
Methylcobalamin: This is the most natural form of
B12 and needs no converting .It is already in its “ready to use” form
and is a more expensive form. Methylcobalamin is the active coenzyme
form necessary for any biological activity. It also is the least stable
with the shortest shelf life, converting back to hydroxycobalamin if not
stored correctly. Methylcobalamin is sometimes referred to as “active B12” as it is in a form ready to be used by the cells.
Adenosylcobalamin: This is also an “active
“ B12 form, making this coenzyme immediately available for use by the
body. It is required for an enzyme known as MCM (Methylmalonyl Coenzyme A
mutase), which resides in the mitochondria and is needed to make
succinyl CoA to produce energy in the citric acid cycle. In humans adenyslcobalamin is found mainly in the tissues especially the liver. It is the primary form of B12 found in non-human animals.
Dr. Charles Lapp, an expert in CFS found
improved energy levels with B12 supplementation of 2500 – 5000 mcg every
2-3 days. Injections have been shown to be most effective. Although, it is now believed that sub-lingual tablets can be almost as effective.
There are several other treatments that I have been reading about and will post here in the near future.
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